This month, SSA added 14 additional Compassionate Allowance Conditions. While most of these conditions are rare, it’s still worth taking note so that you can flag relevant cases.

The newly added Compassionate Allowances conditions are:

• Adenylosuccinate Lyase Deficiency – Neonatal Form and Type 1
• Aicardi Syndrome
• Baraitser-Winter Syndrome
• Beare-Stevenson Cutis Gyrata Syndrome
• Bohring-Opitz Syndrome
• CASK-Related Gene Disorders
• Hepatosplenic T-Cell Lymphoma
• Lafora Disease
• Malignant Migrating Partial Seizures of Infancy (MMPSI)
• OPHN1 Syndrome
• Primary Cardiac Sarcoma
• Primary Intracranial Malignant Melanoma
• Uveal Melanoma – with Metastases
• Warburg Micro Syndrome

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